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1.
Spinal Cord Ser Cases ; 10(1): 9, 2024 Mar 07.
Artículo en Inglés | MEDLINE | ID: mdl-38453883

RESUMEN

STUDY DESIGN: Cross-sectional, analytical study design using a conveneient sampling strategy. OBJECTIVES: To examine the interrelationship between pain, life satisfaction and indices of negative mental well-being amongst the traumatic spinal cord injury (TSCI) population. SETTING: Western Cape Rehabilitation Center in Cape Town, South Africa. METHODS: Participants (n = 70) were adults (mean age of 36.3, SD = 9.2) with TSCI. Participants completed the following instruments: 10 satisfaction items from the World Health Organization Quality of Life Brief Version, short forms of the Center for Epidemiological Studies Depression Scale and the trait scale of the State-Trait Anxiety Inventory, a one-item measure of pain intensity taken from the International Spinal Cord Injury Pain Basic Data Set and the interference scale of the Brief Pain Inventory. RESULTS: Correlational analysis (Pearson r) demonstrated that all the indices of mental well-being as well as the two indices of pain was significantly negatively related to life satisfaction. In addition, life satisfaction mediated the relationship between pain intensity and depression as well as anxiety. Life satisfaction only mediated the relationship between pain interference and depression but not anxiety. CONCLUSIONS: An improvement in life satisfaction may lead to improvements in pain interference, pain intensity as well as psychological distress, amongst persons suffering from TSCI Future research should focus on assessing measures/treatment which may improve life satisfaction in the TSCI population.


Asunto(s)
Calidad de Vida , Traumatismos de la Médula Espinal , Adulto , Humanos , Calidad de Vida/psicología , Salud Mental , Estudios Transversales , Países en Desarrollo , Sudáfrica , Dolor/etiología , Traumatismos de la Médula Espinal/epidemiología , Satisfacción Personal
2.
Digit Health ; 9: 20552076231212314, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-38025095

RESUMEN

Objective: To assess the readiness of healthcare institutions that serve as clinical platforms for Stellenbosch University' rehabilitation students, and to explore the opinions of rehabilitation professionals regarding the integration of telerehabilitation (TR) into service delivery and students clinical training. Methods: This study employed a qualitative research design and involved the participation of fourteen rehabilitation managers. Semi-structured interviews were conducted using both face-to-face and online platforms. Thematic analysis was employed to analyse the collected data. Results: The readiness for implementing TR services varies across different dimensions. Facilities faced challenges related to funding for TR equipment and the absence of policies and guidelines, indicating a lack of financial and governance readiness. Rehabilitation professionals demonstrated high attitudinal readiness but low technical readiness due to a lack of knowledge and skills. Rehabilitation students particularly lacked practical experience, confidence, clinical reasoning and decision-making skills further contributing to low technical readiness. Conclusion: Health care institutions are generally not ready for a successful implementation of TR. To improve the readiness, senior management should actively participate and provide financial support, develop policies, guidelines and training programs for rehabilitation professionals. Educational institutions should incorporate TR program into curricula to prepare students to gain practical experience and familiarity with the use of TR technology for their future clinical practice.

3.
J Rehabil Med ; 55: jrm9427, 2023 Jun 12.
Artículo en Inglés | MEDLINE | ID: mdl-37306508

RESUMEN

OBJECTIVES: To examine convergent and divergent validity of the King's Parkinson's disease Pain Scale - Swedish translated version, and to determine the prevalence of pain according to scale domains in persons with Parkinson's disease. DESIGN: Cross-sectional, validation study. PATIENTS: Ninety-seven persons with Parkinson's disease. METHODS: The pain scale was translated into Swedish by an accredited company, and permission was granted to use the resultant version. Participants completed the rater-administered The King's Parkinson's disease Pain Scale - Swedish version, the visual analogue scale (pain), Parkinson's Disease Questionnaire (bodily discomfort subscale), MiniBESTest and Walk-12G. Spearman's rank correlation coefficient was used to assess the strength of associations. RESULTS: The mean (standard deviation) age of participants was 71 (6.1) years, 63% were male, and 76% presented with mild disease severity. The mean (standard deviation) The King's Parkinson's disease Pain Scale - Swedish version score was 7.84 (12.8). A strong (r = 0.65) and moderate (r = 0.45) association was found between the newly-translated version and visual analogue scale (pain) and Parkinson's Disease Questionnaire - bodily discomfort subscale, respectively. Weak associations were found between the newly translated version and divergent measures. Overall pain prevalence was 57%, with musculoskeletal pain being the most common, followed by chronic and radicular pain. CONCLUSION: This study affirms aspects of validity of the Swedish King's Parkinson's disease Pain Scale. Most participants presented with 1 or more types of pain, highlighting the need for targeted interventions.


Asunto(s)
Dolor Musculoesquelético , Enfermedad de Parkinson , Humanos , Masculino , Anciano , Femenino , Estudios Transversales , Prevalencia , Suecia
4.
Artículo en Inglés | MEDLINE | ID: mdl-37174227

RESUMEN

OBJECTIVE: The objective was to describe the individual items of the environmental factors and to investigate the relationship between the environmental factors to health conditions, general health and quality of life in people with SCI in South Africa. METHODS: Two hundred persons with SCI participated in a cross-sectional survey design. This study formed part of the International Spinal Cord Injury (InSCI) Community Survey. Four major domains, environmental factors, health conditions, general health and quality of life of the survey questionnaire responses, were used for the analysis. Regression models were used to determine the association between the independent variable, which consisted of the specific environmental factors items, and the dependent variables comprising health conditions, general health and quality of life. RESULTS: The commonly reported environmental barriers were public access, lack of short- and long-distance transport and finances. Environmental factors such as public access (p < 0.001), short- (p < 0.001) and long-distance transport (p = 0.001), and friends' (p = 0.003) and colleagues' (p < 0.001) attitudes and communication (p = 0.042) were significantly associated with the presence of secondary health conditions. Finances (p = 0.026), family attitudes (p = 0.037) and communication (p = 0.039) had a significant association with worsened mental health. Services (p = 0.022) and communication (p = 0.042) were also significantly associated with decreased general health. CONCLUSION: The results provide insight into modifiable environmental factors policymakers need to consider or adapt to improve the lives of people with SCI in South Africa with respect to health (secondary health conditions), as well as general and mental health.


Asunto(s)
Calidad de Vida , Traumatismos de la Médula Espinal , Humanos , Calidad de Vida/psicología , Sudáfrica/epidemiología , Estudios Transversales , Traumatismos de la Médula Espinal/epidemiología , Traumatismos de la Médula Espinal/psicología , Salud Mental , Encuestas y Cuestionarios
5.
J Eval Clin Pract ; 29(2): 380-391, 2023 03.
Artículo en Inglés | MEDLINE | ID: mdl-36415056

RESUMEN

RATIONALE: South Africa has a high traumatic injury burden resulting in a significant number of persons suffering from traumatic brain injury (TBI). TBI is a time-sensitive condition requiring a responsive and organized health system to minimize morbidity and mortality. This study outlined the barriers to accessing TBI care in a South African township. METHODS: This was a multimethod study. A facility survey was carried out on health facilities offering trauma care in Khayelitsha township, Cape Town, South Africa. Perceived barriers to accessing TBI care were explored using qualitative interviews and focus group discussions. The four-delay framework that describes delays in four phases was used: seeking, reaching, receiving, and remaining in care. We purposively recruited individuals with a history of TBI (n = 6) and 15 healthcare professionals working with persons with TBI (seven individuals representing each of the five facilities, the heads of neurosurgery and emergency medical services and eight additional healthcare providers who participated in the focus group discussions). Quantitative data were analysed descriptively while qualitative data were analysed thematically, following inductive and deductive approaches. FINDINGS: Five healthcare facilities (three community health centres, one district hospital and one tertiary hospital) were surveyed. We conducted 13 individual interviews (six with persons with TBI history, seven with healthcare providers from each of the five facilities, neurosurgery department and emergency medical service heads and two focus group discussions involving eight additional healthcare providers. Participants mentioned that alcohol abuse and high neighbourhood crime could lead to delays in seeking and reaching care. The most significant barriers reported were related to receiving definitive care, mostly due to a lack of diagnostic imaging at community health centres and the district hospital, delays in interfacility transfers due to ambulance delays and human and infrastructural limitations. A barrier to remaining in care was the lack of clear communication between persons with TBI and health facilities regarding follow-up care. CONCLUSION: Our study revealed that various individual-level, community and health system factors impacted TBI care. Efforts to improve TBI care and reduce injury-related morbidity and mortality must put in place more community-level security measures, institute alcohol regulatory policies, improve access to diagnostics and invest in hospital infrastructures.


Asunto(s)
Lesiones Traumáticas del Encéfalo , Accesibilidad a los Servicios de Salud , Humanos , Sudáfrica , Grupos Focales , Personal de Salud , Lesiones Traumáticas del Encéfalo/terapia , Investigación Cualitativa
6.
Disabil Rehabil ; 45(26): 4381-4387, 2023 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-36447405

RESUMEN

PURPOSE: The unemployment rate post spinal cord injury (SCI) in South Africa is high with limited knowledge of environmental factors outside the health services, especially in an unevenly developed resource setting like South Africa, affecting the employment rate in people with SCI. Our purpose was to investigate factors associated with employment in people with SCI in South Africa. METHODS: Two hundred persons with SCI participated in a cross-sectional survey design. This study formed part of the International Spinal Cord Injury Community Survey. Subsections of the questionnaire responses were used as explanatory variables to predict employment after SCI using logistic regression analysis. RESULTS: The response rate of the study was 54%. Of the 200 participants included, 61% reported being employed before SCI onset whereas only 25% reported being engaged in paid work at the time of this study. The logistic regression model showed not requiring physical assistance in the home environment (p = 0.016), the number of education years before SCI (p = 0.007), household income (p < 0.001), having worked before SCI onset (p = 0.041), and environmental factors (p = 0.029) to be factors associated with employment after SCI. CONCLUSION: The finding suggests multiple factors influence the employment rate, advocating for interdisciplinary rehabilitation approaches and social development interventions to address meaningful occupations in persons with SCI in South Africa.Implications for rehabilitationRehabilitation programs should be adapted and tailored to enhance physical independence.Public policies regarding environmental factors such as access to reliable transport, assistive devices, and public places for wheelchair users are important and could potentially support individuals with spinal cord injury (SCI) becoming employed/re-employed.For successful social/community/civic reintegration for individuals with SCI an intersectional collaboration (i.e., between policymakers, health professionals, and the labor market) needs to be considered to improve the employment opportunities post-SCI.


Asunto(s)
Empleo , Traumatismos de la Médula Espinal , Humanos , Estudios Transversales , Sudáfrica , Traumatismos de la Médula Espinal/rehabilitación , Desempleo
7.
Digit Health ; 8: 20552076221131670, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-36249480

RESUMEN

Objective: To scope all published information reporting on the feasibility, cost, access to rehabilitation services, implementation processes including barriers and facilitators of telerehabilitation (TR) in low- and middle-income countries (LMICs) and high-income countries (HICs). Methods: A comprehensive electronic search of PubMed, Scopus, PEDro, Cochrane library, EBSCOhost (Academic search premier, Africa-wide information, CINAHL, Eric, MEDLINE, Health sources - Nursing/Academic edition), Africa online, as well as ProQuest databases were conducted. To maximise the coverage of the literature, the reference lists of included articles identified through the search were also screened. The analysis included both descriptive summary and inductive thematic analysis. Results: Twenty-nine studies were included. TR was reported to be feasible, cost-saving and improved access to rehabilitation services in both HICs and LMICs settings. Asynchronous methods using different mobile apps (Skype, WhatsApp, Google meet, Facebook messenger, Viber, Face time and Emails) were the most common mode of TR delivery. Barriers to the implementation were identified and categorised in terms of human, organisational, technical and clinical practice related factors. Facilitators for health professionals and patients/caregivers' dyads were also identified. Conclusion: TR could be considered a feasible service delivery mode in both HICs and LMICs. However, the mitigation of barriers such as lack of knowledge and technical skills among TR providers and service users, lack of secure platform dedicated for TR, lack of resources and connectivity issues which are particularly prevalent in LMICs will be important to optimise the benefits of TR.

8.
BMJ Open ; 12(9): e060526, 2022 09 19.
Artículo en Inglés | MEDLINE | ID: mdl-36123065

RESUMEN

INTRODUCTION: Much is known around public health preparedness and response phases. However, between the two phases is operational readiness that comprises the immediate actions needed to respond to a developing risk or hazard. Currently, emergency readiness is embedded in multiple frameworks and policy documents related to the health emergency cycle. However, knowledge about operational readiness' critical readiness components and actions required by countries to respond to public health eminent threat is not well known. Therefore, we aim to define and identify the critical elements of 'operational readiness' for public health emergencies, including COVID-19, and identify lessons learnt from addressing it, to inform the WHO Operational Readiness Framework. METHODS AND ANALYSIS: This is a scoping review following the Joanna Briggs Institute guidance. Reporting will be according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) checklist. MEDLINE, Embase and Web of Science databases and grey literature will be searched and exported into an online systematic review software (eg, Rayyan in this case) for review. The review team, which apart from scoping review methodological experts include content experts in health systems and public health and emergency medicine, prepared an a priori study protocol in consultation with WHO representatives. ATLAS.ti V.9 will be used to conduct thematic data analysis as well as store, organise and retrieve data. Data analysis and presentation will be carried out by five reviewers. ETHICS AND DISSEMINATION: This review will reveal new insights, knowledge and lessons learnt that will translate into an operational framework for readiness actions. In consultation with WHO, findings will be disseminated as appropriate (eg, through professional bodies, conferences and research papers). No ethics approvals are required as no humans will be involved in data collection. PROTOCOL REGISTRATION: This rapid scoping review has been registered on Open Science Framework (doi:10.17605/OSF.IO/6SYAH).


Asunto(s)
COVID-19 , Salud Pública , Humanos , Literatura de Revisión como Asunto , Revisiones Sistemáticas como Asunto
9.
J Rehabil Med ; 54: jrm00302, 2022 Jun 29.
Artículo en Inglés | MEDLINE | ID: mdl-35678293

RESUMEN

OBJECTIVES: To describe the 3-month prevalence and correlates of self-reported physical health conditions in persons with spinal cord injury (SCI) worldwide. STUDY DESIGN: Multinational cross-sectional survey. SUBJECTS: Community-living persons with traumatic or non-traumatic SCI aged >18 years from 21 countries representing all the 6 World Health Organization regions. METHODS: The study used data from 11,058 participants in the International SCI Community Survey (InSCI). The survey, based on the International Classification of Functioning, Disability and Health (ICF) Core Sets for SCI, was conducted in 2017-19 simultaneously in the participating countries. The health conditions were reported on a modified version of the SCI Secondary Conditions Scale. RESULTS: Overall, 95.8% of the participants reported having experienced 1 or more health problems secondary to SCI. Having pain was the most prevalent problem (77.3%), followed by spasticity/muscle spasms (73.5%) and sexual dysfunction (71.3%), and the least prevalent was respiratory problems (28.8%). The participants reported a mean of 7.4 concurrent health conditions. Unmet healthcare needs, being a smoker, being a female, having a complete lesion, and a traumatic injury exhibited significant associations with comorbidity. CONCLUSION: Physical health problems secondary to SCI are extremely common worldwide and demand investment in appropriate management, medical care and preventative measures.


Asunto(s)
Personas con Discapacidad , Traumatismos de la Médula Espinal , Estudios Transversales , Femenino , Humanos , Espasticidad Muscular/epidemiología , Traumatismos de la Médula Espinal/complicaciones , Traumatismos de la Médula Espinal/epidemiología , Encuestas y Cuestionarios
10.
BMC Health Serv Res ; 22(1): 555, 2022 Apr 26.
Artículo en Inglés | MEDLINE | ID: mdl-35473602

RESUMEN

BACKGROUND : Telerehabilitation, i.e. rehabilitation at a distance using Information and Communication Technology (ICT), is a promising avenue for improving health among people with neurological diseases or older adults who often experience limited access to services. Still, little is known about physiotherapists' use, perceptions and needs with regards to telerehabilitation services. AIMS: To describe physiotherapists use and perceptions of, as well as needs for, telerehabilitation services for the rehabilitation of people with neurological diseases or older adults in Sweden. METHODS: In this cross-sectional study, an author-created survey was sent out to members of the Swedish Association of Physiotherapists including questions about the use and perceptions of existing telerehabilitation services (e.g. telephone, internet-based applications and mobile applications) as well as needs of future telerehabilitation services. The results were presented descriptively as numbers and percentages. RESULTS: Three hundred seven physiotherapists were included in this study with 139 (45%) treating people with neurological diseases and 168 (55%) treating older adults. Most respondents did not provide telerehabilitation before (74%) or during (51%) the COVID-19 pandemic. Telephone, which was predominantly used for administrative tasks, was the most frequent utilised ICT used by 68% of the physiotherapist using ICTs several days/week. Few respondents used internet-based applications (12%), mobile applications (3%) or SMS services (8%) and videoconferencing (3%). A majority of the respondents were interested in ICT (78%), felt comfortable using ICT (57%) and were interested in learning how ICT can be used in rehabilitation (92%). Still, few respondents perceived that people with neurological diseases or older adults can use existing ICTs for rehabilitation purposes (18%) and that existing reimbursement system within health care facilitates remote rehabilitation (16%). Important functionality of future ICT perceived by physiotherapists covered patient communication (e.g. chat, SMS and video), assessments (e.g. digital surveys and assessment of physical activity) and treatment (e.g. exercise prescription). CONCLUSION: While physiotherapists had an overall positive perception to use and willingness to learn about telerehabilitation, few used telerehabilitation services before nor during the COVID-19 pandemic and they also perceived multilevel barriers for implementation, ranging from patients ability to use ICT to existing reimbursement systems within health care. Our findings emphasize the need to strengthen the expertise regarding remote services among physiotherapists.


Asunto(s)
COVID-19 , Enfermedades del Sistema Nervioso , Fisioterapeutas , Telerrehabilitación , Anciano , COVID-19/epidemiología , Estudios Transversales , Humanos , Pandemias , Encuestas y Cuestionarios , Suecia/epidemiología
11.
Digit Health ; 8: 20552076211066708, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35223074

RESUMEN

BACKGROUND: Telerehabilitation is an emerging segment of telehealth and telemedicine that has a potential to deliver quality, accessible, cost-effective and efficient rehabilitation services where geographical distance is a critical factor. The objectives of this review are: to describe the feasibility and cost-effectiveness of telerehabilitation, to scope to what extent telerehabilitation has the potential impact on access to quality of rehabilitation services with specific references to low to middle income countries, and to understand key process factors including barriers and facilitators relevant to the implementation of telerehabilitation. METHODS: A scoping review of the literature will be conducted. An electronic search literature will be conducted in PubMed, Scopus, Cochrane library, Africa-wide information, CINAHL, MEDLINE, ProQuest, Web of science and reference lists. The review team will develop a data charting form and pilot it on four randomly-selected studies. The form will be refined based on the results of the piloted articles. Studies identified will be screened at the title and abstract levels by the first reviewer, followed by an independent verification for the accuracy and eligibility by two more reviewers prior to obtaining the full texts. Studies to be included must report on feasibility, cost-effectiveness, access to rehabilitation services, implementation process factors including barriers and facilitators of telerehabilitation. The analysis will include both descriptive summary and inductive thematic analysis. CONCLUSION: Telerehabilitation has ability to change the current standard of care and allow for improved access and health outcomes in cost-effective ways, while addressing the scarce and unequal distribution of limited number of healthcare providers especially in low to middle income country settings. Thus, the research findings could be used by different stakeholders including: researchers, clinicians, policy makers, and implementation teams as they determine the appropriate setup for new telerehabilitation programs.

12.
J Spinal Cord Med ; : 1-8, 2022 Jan 10.
Artículo en Inglés | MEDLINE | ID: mdl-35007494

RESUMEN

OBJECTIVES: To determine the influence of employment, injury characteristics and living situation on psychosocial reintegration in individuals who sustained a traumatic spinal cord injury (TSCI) in South Africa. DESIGN: A cross-sectional exploratory survey. SETTINGS: Communities of the Cape Metropolitan Area, South Africa. PARTICIPANTS: A total of 108 community- dwelling adults, between ages of 19 and 71 years, who have sustained a TSCI more than 1- year ago. OUTCOME MEASURES: : The Sydney psychosocial reintegration scale (SPRS-2). RESULTS: The SPRS-2 and domains mean (SD) scores were: (1) Overall SPRS-2 of 27.87(13.4); (2) Occupational activity of 8.62 (4.8); (3) Interpersonal relationships of 9.80 (5.1); and (4) Living skills of 9.45 (4.9). Multivariate regression analysis resulted in two significant independent variables, namely employment and living situation. Employment alone explained 24.3% of the variance in the overall psychosocial model, 25.6% in the occupational activity model, while employment together with living situation explained 24.2% of the variance in the living skills model, with those employed reporting better psychosocial reintegration and those living in informal dwellings reporting poorer psychosocial reintegration. CONCLUSION: Employment and living situation strongly influenced psychosocial reintegration following a TSCI, indicating the important role of socio-economic status for psychosocial adaptation after injury. As employment plays a significant mediating role, and living in informal dwellings negatively affect psychosocial reintegration following a TSCI, rehabilitation stakeholders and policy makers need to continue lobbying for social and political change that support employment opportunities and provide accessible housing for persons with TSCI.

13.
Disabil Rehabil ; 44(10): 2020-2026, 2022 05.
Artículo en Inglés | MEDLINE | ID: mdl-33016809

RESUMEN

PURPOSE: To identify contextual factors and injury characteristics influencing the quality of life (QoL) among individuals who sustained a traumatic spinal cord injury (TSCI) in South Africa. MATERIALS AND METHODS: We carried out a cross-sectional survey to examined the influence of contextual factors and injury characteristics on quality of life among 108 conveniently selected community-dwelling adults between the ages of 19 and 71 years old, who sustained a TSCI more than 1 year post-injury. RESULTS: Multivariate regression analysis resulted in three significant independent variables (gender, employment, and time living with the injury) that explained 38.1% of the variance in the model, of which being employed and living with a TSCI between 11 and 15 years were the strongest factors influencing the overall and each domain of quality of life. CONCLUSION: Our results highlight that employment plays an important role in QoL for individuals who sustained a TSCI. They also suggest that increased time since the injury is most likely to provide individuals an opportunity to develop efficient coping strategies, allowing for greater overall adjustment and life satisfaction, leading to a better quality of life.IMPLICATIONS FOR REHABILITATIONSince the time of the injury was found to be improved QoL, there is a need to improve the health care system of Individuals with SCI.As the employment is a significant factor positively influencing QoL, vocational rehabilitation programs should be included during the rehabilitation processes.Rehabilitation stakeholders need to continue lobbying for social and political changes that support expanded employment options for individuals who sustained a TSCI in order to improve their quality of life.


Asunto(s)
Calidad de Vida , Traumatismos de la Médula Espinal , Adulto , Anciano , Estudios Transversales , Humanos , Persona de Mediana Edad , Rehabilitación Vocacional , Sudáfrica , Traumatismos de la Médula Espinal/rehabilitación , Adulto Joven
14.
Artículo en Inglés | MEDLINE | ID: mdl-36612393

RESUMEN

Chronic pain amongst individuals with traumatic and nontraumatic spinal cord injury (SCI) has high prevalence rates, with severe impact on the activities of daily living, mood, sleep and quality of life. This study aimed to explore the experiences and challenges of chronic pain management amongst the traumatic spinal cord injury (TSCI) population in the Western Cape region of South Africa. A qualitative descriptive approach was chosen for the study, in which 13 individuals living with TSCI were purposively recruited and interviewed telephonically. An inductive thematic analytic approach was used. The results indicate ineffectiveness of standard pain management, with a lack of education regarding pain physiology and pain management strategies as well as unbalanced decision-making between clinician and patient. Thus, patients develop coping strategies to survive with pain. Current pain regimes are suboptimal at best, underpinned by the lack of clarity or a mutually agreed plan to mitigate and eradicate pain. There is a need for chronic pain management beyond pharmacological prescription. Future practices should focus on adopting a holistic, biopsychosocial approach, which includes alternative pain therapy management. In addition, advances in pain management cannot be achieved without adopting a therapeutic alliance between the clinician and patient.


Asunto(s)
Dolor Crónico , Traumatismos de la Médula Espinal , Humanos , Manejo del Dolor/métodos , Actividades Cotidianas , Calidad de Vida/psicología , Dolor Crónico/epidemiología , Dolor Crónico/terapia , Dolor Crónico/psicología , Traumatismos de la Médula Espinal/complicaciones , Traumatismos de la Médula Espinal/epidemiología , Traumatismos de la Médula Espinal/terapia
15.
J Spinal Cord Med ; 45(5): 739-747, 2022 09.
Artículo en Inglés | MEDLINE | ID: mdl-33476256

RESUMEN

OBJECTIVES: To assess perceived levels of community reintegration, and examine whether self-efficacy relates to community reintegration among persons with a TSCI. DESIGN: A cross-sectional exploratory survey. SETTINGS: Cape Metropolitan Area. Western Cape Province, South Africa. PARTICIPANTS: A hundred and eight (108) conveniently selected community-dwelling adults between the ages of 19 and 71 years old, who sustained a TSCI more than 1-year post-injury. OUTCOMES MEASURES: Community Integration Measure (CIM) and the Moorong Self-Efficacy (MSES). RESULTS: The CIM score ranged between 10 and 50 with an overall mean score of 31.48; SD = 12.5. CIM item 10 "I have something useful and productive to do in this community" was the least scored by participants (M = 2.50, SD = 1.4). Multivariate analysis demonstrated that social functioning factor of self-efficacy, accommodation type, and level of injury were the only variables influencing perceived community reintegration that explained 47.3% of the total variance, of which social functioning factor of self-efficacy was the strongest predictor that alone explained 33% of the variance in the model after controlling for the influence of accommodation and the level of injury. CONCLUSION: Community reintegration achieved by individuals with a TSCI in this study is generally low. Individuals' perceptions about community reintegration are affected by the community in which one lives. Self-efficacy plays a major role in community reintegration following a TSCI. However, reintegration is largely dependent on social functioning rather than the activity of daily living factors of self-efficacy.


Asunto(s)
Autoeficacia , Traumatismos de la Médula Espinal , Adulto , Anciano , Integración a la Comunidad , Estudios Transversales , Humanos , Persona de Mediana Edad , Sudáfrica/epidemiología , Adulto Joven
16.
Disabil Rehabil ; 44(26): 8463-8470, 2022 12.
Artículo en Inglés | MEDLINE | ID: mdl-34904504

RESUMEN

PURPOSE: Accelerometry measurements are a promising method to provide quantitative information of upper limb function in daily life post stroke. Our purpose was to investigate i) the validity of accelerometer-based vector magnitude ratios (VMR) to distinguish upper limb function between individuals post-stroke and healthy controls during ambulatory and non-ambulatory activities and, ii) the association between the VMR and clinical assessment of upper limb function for individuals post-stroke. METHODS: Forty persons with stroke and 32 healthy controls wore wrist and hip accelerometers while performing three upper limb activities in a clinical setting and during three days in daily living. Clinical assessment of upper limb function was assessed with the Chedoke-McMaster Stroke Assessment measure and ABILHand. RESULTS: In the clinical setting and daily living, the VMR was significantly lower for individuals post-stroke compared to controls during non-ambulatory activities but not during ambulatory activities. There was a moderate to strong association between VMR and clinical assessment of upper limb function during all conditions, except for walking in the clinical setting. CONCLUSION: The VMR could be used as a sensitive objective marker to measure upper limb function post-stroke during ambulatory and non-ambulatory daily activities.Implications for rehabilitationAccelerometer-based assessment of upper limb function is a sensitive measure of upper limb function post stroke during different activity domains.Accelerometers-based assessment of arm function can detect differences in arm function outside the clinical setting (daily living) over a prolonged period that are not always identified by clinical assessment or perceived ability.


Asunto(s)
Rehabilitación de Accidente Cerebrovascular , Accidente Cerebrovascular , Humanos , Actividades Cotidianas , Extremidad Superior , Muñeca , Acelerometría/métodos
17.
Int J Public Health ; 66: 619823, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-34744581

RESUMEN

Objectives: As advancing evidence on modifiable resources to support mental health in persons experiencing physical disabilities is of particular importance, we investigate whether structural and functional social relationships relate to mental health in people with spinal cord injury (SCI). Methods: Data from 12,330 participants of the International SCI community survey (InSCI) from 22 countries were analyzed. Structural (partnership status, living situation) and functional aspects of social relationships (belongingness, relationship satisfaction, problems with social interactions) were regressed on the SF-36 mental health index (MHI-5), stratified by countries and for the total sample using multilevel models. Results: Functional aspects of social relationships were consistently related to clinically relevant higher MHI-5 scores and lower risk of mental health disorders (MHI-5 >56). Structural social relationships were inconsistently associated with mental health in our sample. Conclusion: This study provides evidence that functional aspects of social relationships are important resources for mental health. Interventions to establish and maintain high quality relationships should be considered in public health interventions and rehabilitation programs to reduce long-term mental health problems in persons experiencing physical disabilities.


Asunto(s)
Personas con Discapacidad , Relaciones Interpersonales , Salud Mental , Personas con Discapacidad/psicología , Personas con Discapacidad/estadística & datos numéricos , Salud Global/estadística & datos numéricos , Humanos , Salud Mental/estadística & datos numéricos , Observación , Encuestas y Cuestionarios
18.
Arch Phys Med Rehabil ; 102(10): 1947-1958.e37, 2021 10.
Artículo en Inglés | MEDLINE | ID: mdl-34119460

RESUMEN

OBJECTIVE: To examine relationships between age and spinal cord injury (SCI) and cause of SCI and how this depends on economic development. DESIGN: Cross-sectional survey. SETTING: Community, 22 countries representing all stages of economic development. PARTICIPANTS: A total of 12,591 adults with SCI (N=12,591). INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Interactions between age at injury and gross domestic product per capita based on purchasing power parity (GDP PPP) quartiles calculated with the application of logistic regression with the Maximum Likelihood estimator. Independence between SCI cause and age was assessed with the Wald test. RESULTS: In persons with traumatic SCI, younger age was associated with a higher likelihood of injury in motor vehicle collisions, whereas older individuals had a greater chance of SCI due to falls. Associations between increased likelihood of high-energy traumatic SCI and younger age, low-energy traumatic SCI with older age, nontraumatic SCI with older age in persons injured in adulthood, and a higher prevalence of incomplete SCI lesions in individuals injured at an older age were revealed. Higher GDP PPP influenced positively the likelihood of low-energy SCI in older individuals and was negatively associated with the chance of sustaining SCI in motor vehicle collisions and the likelihood of having nontraumatic SCI at an older age. CONCLUSIONS: SCI in older age is predominantly because of falls and nontraumatic injuries. Higher country income is associated with an increased proportion of SCI sustained later in life because of low-energy trauma involving cervical injury and a lower chance of being because of motor vehicle collisions. An increased prevalence of nontraumatic SCI in older individuals associated with lower country income may reflect a higher exposure to socially preventable conditions and lower access to or efficacy of health care. Future studies on etiology of SCI should make the distinction between low and high falls and overcome underrepresentation of older persons.


Asunto(s)
Desarrollo Económico , Traumatismos de la Médula Espinal/etiología , Adolescente , Adulto , Factores de Edad , Anciano , Anciano de 80 o más Años , Niño , Preescolar , Estudios Transversales , Femenino , Humanos , Lactante , Recién Nacido , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios , Adulto Joven
19.
BMC Geriatr ; 21(1): 96, 2021 02 01.
Artículo en Inglés | MEDLINE | ID: mdl-33526031

RESUMEN

BACKGROUND: Process evaluations provide contextual insight into the way in which interventions are delivered. This information is essential when designing strategies to implement programs into wider clinical practice. We performed a process evaluation of the HiBalance effectiveness trial investigating the effects of a 10-week of highly challenging and progressive balance training for mild-moderate Parkinson's disease (PD). Study aims were to investigate i) the quality and quantity of intervention delivery and ii) barriers and facilitators for implementation. METHODS: Process outcomes included; Fidelity; Dose (delivered and received) Recruitment and Reach. Investigation of barriers and facilitators was guided by the Consolidated Framework for Implementation Research. Program delivery was assessed across four neurological rehabilitation sites during a two-year period. Data collection was mixed-methods in nature and quantitative and qualitative data were merged during the analysis phase. RESULTS: Thirteen program trainers delivered the intervention to 12 separate groups during 119 training sessions. Trainer fidelity to program core components was very high in 104 (87%) of the sessions. Participant responsiveness to the core components was generally high, although adherence to the home exercise program was low (50%). No significant context-specific differences were observed across sites in terms of fidelity, dose delivered/ received or participant characteristics, despite varying recruitment methods. Facilitators to program delivery were; PD-specificity, high training frequency and professional autonomy. Perceived barriers included; cognitive impairment, absent reactional balance among participants, as well a heterogeneous group in relation to balance capacity. CONCLUSION: These findings provide corroborating evidence for outcome evaluation results and valuable information for the further adaptation and implementation of this program. Important lessons can also be learned for researchers and clinicians planning to implement challenging exercise training programs for people with mild-moderate PD. TRIAL REGISTRATION: ClinicalTrials.gov, NCT02727478 , registered 30 march, 2016 - Retrospectively registered.


Asunto(s)
Enfermedad de Parkinson , Ejercicio Físico , Terapia por Ejercicio , Humanos , Evaluación de Resultado en la Atención de Salud , Enfermedad de Parkinson/diagnóstico , Enfermedad de Parkinson/terapia , Evaluación de Procesos, Atención de Salud
20.
Spinal Cord ; 59(2): 225-233, 2021 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-33051560

RESUMEN

STUDY DESIGN: Qualitative descriptive study with inductive thematic content analysis. OBJECTIVES: To explore how individuals living with paraplegia in South Africa experience sex and intimacy and how they perceive the related health services and support they received whilst adapting to life post injury. SETTING: Community based in Cape Town, South Africa. METHODS: Purposive and snowball sampling were combined to enrol ten individuals with paraplegia who were all users of the public health system and had been injured for more than 1 year. Semi-structured interviews were conducted, and data analysed using inductive thematic content analysis. RESULTS: Four categories were derived and captured by the overarching theme of 'a journey to reclaiming sexuality', as depicted by each participant. Psychological consequences of the injury led to challenges with sex and intimacy including a strong emphasis on partner satisfaction. A perceived lack of support mechanisms particularly in relation to poor timing of health services and insufficient peer support led to a lack of understanding and difficulties adjusting to changes in sexual function. Meaningful relationships including elements of sex and/or intimacy were rediscovered following a re-adjustment period although participants often felt disabled by society as socio-cultural norms, such as gender concepts, influenced each individual journey. CONCLUSIONS: Complex interactions between intrinsic psychological factors, such as low sexual self-esteem and external factors such as socio-cultural norms, affect sex and intimacy in individuals with paraplegia in this novel context. South Africa's health system should be strengthened to support optimal sexual outcomes of persons with a spinal cord injury.


Asunto(s)
Traumatismos de la Médula Espinal , Humanos , Paraplejía , Investigación Cualitativa , Conducta Sexual , Sexualidad , Sudáfrica , Traumatismos de la Médula Espinal/complicaciones
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